My Story
Multiple sclerosis impacts each person affected by it differently. Someone who has Relapsing Remitting Multiple Sclerosis (RRMS) like I do may have completely different symptoms and completely different challenges. From fatigue and mobility issues to cognitive difficulties and sensory disturbances, RRMS can affect various aspects of daily life in different ways for different individuals. In sharing my own experiences and insights while taking on this challenge, I hope to shed light on the complexities of MS and foster greater empathy and understanding within the community.
On August 11, 2021, I woke from sleep with numbness and tingling on the left side of my face and down my left arm. The days the followed included a visit to the ER, a brain and spine MRI, a lumbar puncture, a consult with a neurologist and a second consult with a different neurologist. What I was initially told in the ER was confirmed. I was diagnosed with relapsing remitting Multiple Sclerosis.
The initial treatment with high dose steroids did not work. My facial and arm numbness persisted. I was terrified that I would only get worse. This created anxiety, fear and worry. I went through a loneliness that I had never felt before. I was scared that all the simple things in life, like walking, would be taken away. With plasma exchange treatments my symptoms resolved but the uncertainty remained.
I am following a treatment plan which has helped reduce the chance of having new flares. I continue to struggle with "pseudo flares", which are psychologically challenging but manageable, and I am learning what things tend to trigger these as well. My family, parents, siblings, in-laws, friends and MS support group have all been strong for me during this journey. Running has proved to be a great outlet for me. I have also found strength in following a Plant Based diet. It is with this background and this support that I hope to be the first person with Multiple Sclerosis to run across the United States!!